I just spent two weeks in Poland and went to the Lyme/CFS clinic almost daily. It’s good to get some answers, and yet the treatments this time had less effect than last summer. I think it is because the treatment mainly focused on repairing the mitochondria, while what I more acutely need is to focus on active infections.
Here are some highlights:
Lab Reports February 2016
Active Epstein-Barr, Lyme, and two pneumonia bacteria. (I am not surprised about this. For instance, my Lyme symptoms return when I am off Artemisinin for two days a week.)
Epstein-Barr (these should be less than 2)
EBV LTT antigen 1 ug/ml 6.6
EBV LTT antigen 0,5 ug/ml 2.9
Borrelia (Lyme) (these should be less than 2)
sensu stricto 3.1
Pneumonia (these levels have increased since July 2015, which matches my experience)
Mycoplasma pneumoniae IgG 118 (has increased, was 96 in July 2015)
Chlamydia pneumoniae IgG 159 (has increased, was 118 in July 2015)
OK vitamin D3 level.
Vit. 25-OH D3 73,4 ng/ml
Not active candida.
Candida albicans IgA < 10 U/ml
Candida albicans IgM < 10 U/ml
Methylmalonic acid 17 ug/l normal range 9-32 (an indirect indicator for B12)
Magnesium are at normal levels. Selenium is at 135 ug/l (normal is 50-120) so it’s a little high, and the symptoms of high selenium fits with what I have. (It seems that just about all of the positive findings have similar symptoms, and fit with mine….!)
It’s also possible that I have heavy metals in my body (increasing the load) and parasites.
A “Food Detective” test found that my body reacts strongly to almonds and cow’s milk, and mildly to wheat, rye, oats, mushrooms, and yeast. (None of these are surprising to me. I have known about my reaction to sugar, what, and diary, and also some other grains and almonds.) It may be even more important for me to stay away from these foods since my body mobilizes against them, which means it will have fewer resources to take care of the real threats (intracellular EBV, Lyme, pneumonia).
Lab Reports from June 2015
EBV IgG 284 U/ml (Epstein-Barr antibodies, over 20 is positive)
C3A / C4A serum levels. These were low and suggested Sjøgren’s disease. Later results were negative for Sjøgren’s.
C3A serum level 0.27 (low, o.58 – 1.90 is normal range)
C4A serum level 0.37 (low, 0.57 – 1.68 is normal range)
VEGF 0.86 (within normal range)
Glucose 6 phosphate dehydrogenase 10.2 U/g Hb (normal range 7.20 – 10.50. This is a metabolic pathway providing energy to cells.)
ADH antidiurethic hormone 5.0 ng/l (normal is below 8)
Antibodies p/EBV IgM 0.25 S/CO (negative, below 0.50 is negative)
Antibodies p/EBV IgG 59.16 S/CO (postive, over 1.00 is positive)
Vitamin 25-OH D3 37.0 ng/ml (normal/optimal range is 30-50)
Vitamin B12 127.4 pg/ml (very low, should be 200-800 range – or really 400-800 from what I read other places)
Borrelia IgM Western-Blot – negative, no reaction. (This is likely a false negative based on symptoms and other tests.)
CD3/CD8 (T-cell co-receptors)
% CD3+CD4+ 13.3 (low, normal range is 19.0-38.9)
CD3+CD4+ 242 (low, normal range is 300-1200)
CD4/CD8 3.54 (high, normal range is 0.80-2.50)
% CD3+CD8+ 14.6 (low, normal range is 19.0-38.9)
CD3+CD8+ 266 (low, normal range is 300-1200)
Cortisol 472.3 nmol/l (normal range is 171-536)
Antibodies p/Mycolasma pneumoniae IgA negative
Antibodies p/Mycoplasma pneumoniae IgG 95.7 RU/ml (over 20 is positive)
Antibodies p/Chlamydia pneumoniae IgG 118.39 RU/ml (over 22 is positive)
Antibodies p/Chlamydia pneumoniae IgA negative
Sodium 146 mmol/l (little high, normal range is 136-145)
Potassium 3.97 mmpl/l (normal range is 3.5-5.1)
Chloride 109 mml/l (little high, normal range is 98-107)
ALT 24.1 U/l (normal is above 4 – not sure what this is)
AST 25.4 U/l (normal is below 39 – not sure what this is)
TSH 2.480 ulU/ml (normal range is 0.270-4.200 – thyroid stimulating hormone)
Free thyroxine FT4 17.89 pmol/l (normal range is 12.00-22.00 – thyroid)
Triidothyrine FT3 5.68 pmol/l (normal range is 3.10-6.80 – thyroid)
Testosteron 22.36 nmol/l (normal range is 9.90-27.80)
Lab results from Ahus (hospital in Norway, February 2016)
CMV IgG Negative
CMV IgM Negative
EBV EBNA-IgG Negative
EBV VCA-IgG 345 (The Norwegian doctor says this suggest past infection. When I look at it, I see a higher number than the results June 2015 which suggests active infection.)
EBV VCA-IgM Negative
Hepatitis B virus core antigens Negative
Hepatitis B virus surface antigens Negative
Hepatitis C virus antigens Negative
Treatment February 2016
While at the clinic this time, I received i.v. to repair mitochondria and remove heavy metals from my body. I also did two hyperthermia treatments.
What I was prescribed while I was there:
Multimessenger (for immune system). Consists of: Colostrum/ betainehydrochlorid / Larix occidentalis/ Green Tea extract/ Punica granatum/ astragalus membranaceus/ Lentinula edodes/ Grofila Frondosa
Artemisinin 500mg x 2/day
Black cumin oil 5ml away from food – black seed oil “Ethiopia” from El-Hawag
Cholestyremine (to remove heavy metals)
Plaquenil (for parasites + possible Sjogren’s syndrome)
As I suspected, my doctor also recommends I go back to using antibiotics to take care of the EPV, Lyme, and pneumonia.
I also take vitamin A+K, magnesium, and eleuthero (Siberian ginseng for strength) and echinacea (for immune function).
What I am prescribed from my herbalist:
Eleuthero to max comfort
Kapi kachu to max comfort
Methyl Folate work up to 5g
Weakened system and accumulation
Here is what I suspect happened:
I had mononucleosis at 14 or 15 followed by an initial CFS a few months later. I was sick most of high school.
I did better after high school, as long as I was careful about what I ate and to get rest when I needed.
I had a severe pneumonia 6-7 years ago which never left my system, and I had a strong return of the CFS a few months later.
I got Lyme May of 2015 (numb arms, legs, face, tongue, poor memory, severe fatigue).
It seems that each of these – the Epstein-Barr, pneumonia, and Lyme stayed in and increased the load on my system. The two periods of CFS both came a few months after a serious infection (mononucleosis and pneumonia). It’s likely that my body was initially weakened by the EPB and was then less able to fight off the rest.
It’s also possible that my system was weakened by feeling lost and off track, which I did both at age 14-15, and 6-7 years ago. During times when I have experienced a strong sense of purpose and being on track, I tend to do better.